Global News

Showing posts with label Autism awareness. Show all posts
Showing posts with label Autism awareness. Show all posts

March 8, 2014

What It's Like on the Autism Spectrum

Intense stories of family with autism spectrum disorder, as submitted by Atlantic readers
James Hamblin  |  theatlantic.com


In The Atlantic print magazine this month, Hanna Rosin tells the story of her son Jacob's diagnosis with Asperger syndrome, in the context of the psychiatric community's recent change in the definition of the disorder to part of what's now known as autism spectrum disorder.

We received a lot of thoughtful responses from readers who have experience with the disorder in their own lives, themselves or their families, about how the diagnosis has affected them, and what the changes in definition mean to everyone. Here are excerpts from some of those stories.

I remember starting home-based behavioral therapy and that three months after... CONTINUE >

—Kammy Kramer; Eagan, Minnesota, USA

MORE STORIES

What I still can’t comprehend is how he’ll be able to go on living in a world not designed for him.

It’s the most important thing in his life, so why is it not for everyone else?

I am used to people asking what his savant abilities are, as they assume that all people with autism must have one.

Every parent of a child on the spectrum can tell you about that play date. You watch the other kids, then you watch your kid.

That said, I am fine calling myself either thing, or nothing at all.

Our differences can indeed be key to our success. But the challenges of autism remain real.

January 25, 2014

Top 10 Quotes From the Sound Off For Autism Speaks Celebrities!


Here are some of our favorite quotes from celebrities participating:


Jim Parsons
“Penny! (knock knock) Penny! (knock knock) Penny!”
~ (Sheldon Cooper from The Big Bang Theory)



Peter Dinklage
“When you’ve known me longer, you’ll learn that I mean everything I say.” ~ (Tyrion Lannister from Game of Thrones)



Adam West
“Come on, Robin, to the Bat Cave! There’s not a moment to lose!” 
~ (Batman from The TV Series Batman)



December 4, 2012

SOUND OFF for Autism Speaks™


Sound Off For Autism Speaks is a one of a kind campaign where fans can get a custom recorded message from their favorite celebrity. Users pick their custom message for just $299, the celebrity records it for them and Autism Speaks delivers a digital file of the celebrity speaking their actual message! 100% of the proceeds will benefit Autism Speaks. FIND OUT MORE

November 6, 2012

Oprah On Autism: Part 1


Autism is a growing epidemic affecting millions of families. Watch Part 1 in a three-part series on Oprah, as she interviews three parents featured in the film, “Autism Everyday”. This series looks deeper into autism to give the public a better understanding and raise awareness and compassion for this condition.




Oprah On Autism: Part 2
Imagine being a parent who has never received a hug from their child? Or never hearing their child say the words "I love you!"We need to help...


Oprah On Autism: Part 3
Watch Part 3 in a three-part series on Oprah, as she interviews three parents featured in the film, "Autism Everyday." In this video siblings of children...




November 1, 2012

Oprah On Autism - Part 3


Watch Part 3 in a three-part series on Oprah, as she interviews three parents featured in the film, "Autism Everyday." In this video siblings of children...

Part 1   <   Part 2   <   Part 3



Oprah On Autism: Part 2

Imagine being a parent who has never received a hug from their child? Or never hearing their child say the words "I love you!"We need to help...





Part 1   <   Part 2   >   Part 3

July 30, 2012

Autism awareness: Leading others by example


By JO ASHLINE
By JO ASHLINE
OC Moms
FOR THE REGISTER
Trust me when I tell you that what came out of my mouth wasn't at all what I truly wanted to say to her. But I was suspended in that fragile moment between trying to hold it together for the sake of my children and succumbing to the need to come apart at the seams, and it was all my lips could muster as I wavered on the tightrope dividing the two.
"Um, excuse me, can I help you with something?"
Article Tab: image1-Autism awareness: Leading others by example

She looked up at me startled. 
I had to grip the shopping cart so I wouldn't collapse from emotion.
"This is autism," I told her, as I pointed to Andrew, splayed out on the floor of the plastic bin aisle, engaging in an unraveling I had never witnessed in public before. "It can be really hard, so please keep your staring and eye rolling to yourself."
My voice was shaky but firm.
Obviously surprised at being caught and subsequently called out on her judgmental reaction to my son's sudden and all-consuming meltdown, she croaked out a lame "sorry," and scurried away.
It wasn't until she was completely out of sight that I allowed my legs to turn to Jello and buckle underneath me as I sat next to Andrew on the cold floor.
Target had never felt so bleak and unwelcoming. READ MORE >>
This Modified Life is a column by Jo Ashline for and about the families in Orange County living with special needs. Jo is a freelance writer and married mother of two. If you have a  question for Jo or a suggestion for a topic, email her at ashline02@sbcglobal.net.


Your generous donations help us continue our work*

SECURE DONATION via PayPal

RELATED ARTICLES:

July 27, 2012

NAA’s Big Red Safety Boxes: FREE

The latest round of the National Autism Association’s Big Red Safety Boxes will be available August 1st. The Big Red Safety Boxes are provided free-of-charge to families with a loved one at risk of wandering, while supplies last. For more information visit National Autism Association.
“In our continued efforts to address wandering prevention in the autism community, NAA has created a new category for safety-related products in our Little Shop of Hope. Here you will find items including window clings, safety cards, door/window alarms, safety alert wristbands, stop sign visual aids, ID products and more.” 
NAA's Big Red Safety Box Grant Application with Optional Donation: Click Here

or for FREE printout version:  Click Here


Just $35 will cover the cost of providing this life-saving toolkit at no charge to a family in need. 

July 23, 2012

Serendipity: Our Family’s Special Journey Through Autism


My husband and I are both practicing physicians. We are blessed with two lovely children – Raphael and Ysabell. Sometime in 2001, I decided to lay low in my medical practice and devote more time for our family. It came as no surprise to people close to me for they had always known that my husband and I put our family first at all times. We moved to a home in a more quiet suburban metro, to allow more space for our growing children. We agreed that the arrangement was temporary, and that I would resume private practice after 5 years, when the kids would already be in school. Everything was just perfect.

The Symptoms
Both our children loved to sing and they did sing rather well even at an early age. Most days were filled with songs and lullabies. We hardly noticed at first that that was all that Ysa did all day – sing. Even before age 2, she memorized all Barney songs and rendered them heartily every waking moment. We barely noticed that she would not answer when her name was called; we thought she was just “suplada” like some older women in our family. She called me “Mama” but we failed to see that she was just mimicking a TV ad, and called every one else by the same name. Her brother would often bring her out to play, though she preferred parallel play as expected at her age. Often times, she refused to follow instructions and would throw temper tantrums when she couldn’t get her way. We thought it was her personality and more discipline would be the answer. She was at par, if not advanced, in her gross motor skills though we were very much surprised at... READ MORE >>

July 10, 2012

Celebs who are passionate about autism


AUTISM ADVOCATES

In the U.S., over three million people suffer from autism and that number is expected to grow. Luckily, there are familiar faces on the front lines promoting education and giving guidance to the public. Global Autism Awareness wants to shine a light on celebrities who have become dedicated autism advocates.

Holly Robinson-Peete and son Rodney Jr

Holly Robinson Peete
Actress and TV personality Holly Robinson Peete and her husband Rodney are the founders of the HollyRod Foundation. Created in 1997, the non-profit strives to provide a better quality of life for individuals with autism and Parkinson's disease. For the Peete's, both conditions hit close to home. Their son Rodney Jr. was diagnosed with autism at the age of 3, and Holly's father Matthew was diagnosed with Parkinson's at 46. If you'd like to learn more about their organization please visit HollyRod's official site.

                                                                                           

Toni Braxton

Ever since Toni Braxton's youngest son Diezel was diagnosed with autism (at age 3), she's used her celebrity to promote awareness. That's why the singer recently partnered with SheKnows for the Where's the Other Sock campaign. It's an auction that will feature a one-of-a-kind dress (made from celebrity socks) and modeled by Braxton. The proceeds will benefit the charity Autism Speaks. Find out more info by visiting the Where's the Other Sock homepage or watching the video below. Toni Braxton talks autism and SheKnow's Where's the Other Sock campaign: Click Here

                                                                                           

Claire Danes

In 2010, Claire Danes starred in the biopic Temple Grandin, which centered on an autistic woman who revolutionized the humane handling of livestock. The actress won a Golden Globe and an Emmy for playing the title character and used the media coverage to promote awareness. "Autism does exist on a spectrum, there's so many manifestations, every case is particular," says Danes. "You can't generalize. I think autism is more prevalent than anyone knew. It's really important that we know what it is and how to work with it."

                                                                                           

Doug Flutie

Football great Doug Flutie has spent over a decade raising autism awareness. In 2000, he and his wife Laurie created the Doug Flutie Jr. Foundation for Autism. It was named after their son Doug Jr. who has the disorder. The Flutie's foundation is "committed to funding organizations that provide direct services, family support grants, education, advocacy and recreational opportunities" for individuals and families affected by autism. You can learn more at Dougflutiejr.org.

Now that you've discovered these great organizations, don't just sit there, get active!

Sheknows.com  |  Photo credit: WENN/FayesVision/ PNP

July 9, 2012

Holly Robinson Peete Rips 50 Cent Apart on Autism, Gets Him to Apologize

Last week rapper 50 Cent responded bitterly to an overeager fan on Twitter by saying “yeah just saw your picture fool you look autistic.” Actress Holly Robinson Peete, whose oldest son is autistic said her heart sunk when she read the tweets and she penned an open letter to 50 Cent that ultimately got him to do just what the letter requested: delete the insensitive tweets and apologize.

It all started out when a fan asked 50 Cent why his latest album took longer than expected to be released. The tweets upset the rapper he made the comments mentioned above and with a follow up that read “I don’t want no special ed kids on my time line follow some body else.”
Peete posted an open letter to 50 Cent on her website that blasts his “hurtful, immature and misinformed” comments. Peete’s letter is below:
Dear 50 Cent,
Since last night my twitter timeline is flooded with tweets and retweets about a response you posted to someone who insulted you. When I read it my heart sank. I thought maybe your account had been hacked. No such luck. Granted, his comment was completely out of line but your retort: “i just saw your picture fool you look autistic”- was so so disappointing. I mean, that’s your comeback?? And you didn’t stop there. You went on to joke about not wanting “special ed kids” on your timeline. Seriously, THIS is how you use your platform of 8 million plus followers??
I’ve met you in passing over the years and I know you are a bright, astute businessman and legitimate philanthropist so it is with a bit of sincere confusion that I ask you… Do you even know what autism is? And what exactly does “autistic” look like? Do you know how wildly prevalent autism is? 1 in 88 have it. That’s 1 in 54 boys. Families suffer a social stigma you will never know. It is a financial and emotional drain for millions, so our non-profit- HollyRod Foundation works hard to raise funds to help these families cope…
hollyrp_43_austims.jpg
> I hope you can see how what you might see as a benign insult-or not- was so randomly hurtful, immature and misinformed. Maybe you are naive or indifferent as to how many of your fans might be deeply and personally offended by your insult. At the very least-can you please delete it? If you’ve read your mentions today I am sure you have felt the wrath of autism parents. We are no joke. Neither is autism. We are not about to let you attempt to make “autistic” the new “R-word” under our watch.

Finally, this is my son Rodney Peete. He has autism. So I guess this is what autistic looks like? He is in special ed. He loves rap music and is a HUGE fan of yours. He’s a tremendous kid. He has to deal with so much trying to fit in. This isn’t helping.
The rapper subsequently deleted the offending tweets on his timeline, and on Sunday, he took the extra step to issue an apology for his comments. “I realize my autism comments were insensitive, however it was not my intention to offend anyone and for this I apologize,” 50 Cent wrote.
On average U.S. children aren’t diagnosed with autism until they’re about 4 1/2 years old, however statistics show black children with autism are one to two years older than white children before they’re even diagnosed. A recent study also found that black children with autism were more likely than whites to get the wrong diagnosis during their first visit with a specialist.

ColorLines  |  by Jorge Rivas

50 Cent Apologizes for 'Insensitive' Tweets on Autism



Lionel Deluy

The rapper, who rarely apologizes for his often-offensive language in his music, has responded to the backlash on his Twitter after he told an angry fan he "dont want no special ed kids on [his] time line."

Rapper 50 Cent caused a Twitter uproar after he responded bitterly to an overeager fan on the social networking site, writing for his nearly 7 million followers, "yeah just saw your picture fool you look autistic." The fan had earlier jabbed at the rapper about his upcoming new record, "5 (Murder by Numbers)," "Release the album or get shot again."

But his comments were not overlooked, and several people were upset by his comments, including actress and autism activist Holly Robinson Peete, whose eldest son RJ was diagnosed with autism at age 3. Peete wrote an open letter to the rapper and included a picture of her now-13-year-old son, saying, "this is my son Rodney Peete. He has autism. So I guess this is what autistic looks like? He is in special ed. He loves rap music and is a HUGE fan of yours. He’s a tremendous kid. He has to deal with so much trying to fit in. This isn’t helping."The rapper didn't stop there: "I don't want no special ed kids on my time line follow some body else," he wrote. 50 Cent released the album shortly afterward.

According to a new study by the Centers for Disease Control and Prevention, one in 88 U.S. children has an autism spectrum disorder.

The rapper subsequently deleted the offending tweets on his timeline, and on Sunday, he took the extra step to issue an apology for his comments. "I realize my autism comments were insensitive, however it was not my intention to offend anyone and for this I apologize," 50 Cent wrote.

While the rapper rarely apologizes for his often politically incorrect opinions, lyrics and comments, 50 Cent has backpedaled before when he has tweeted before he thinks. Earlier this year, the rapper apologized to Interscope Records after he blamed them for leaking his song (it turned out to be a computer glitch, he said). And in March 2011, he issued a sort-of apology for tweeting jokes about the tsunami in Japan, which several deemed inappopriate. "Some of my tweets are ignorant I do it for shock value," he wrote afterward. "Hate it or love it. I'm cool either way."

The rapper had shocked many when he made light of the tragedy soon after the natural disaster story broke. In one, he tweeted, "Look this is very serious people I had to evacuate all my h**s from LA, Hawaii and Japan. I had to do it. Lol." In another, he mocked tsunami threat to the U.S. west coast, writing "Wave will hit 8am them crazy white boys gonna try to go surfing."

The Hollywood Reporter | by Jane Kellogg

June 17, 2012

PSA video — National Autism Association

PLEASE SHARE... A PSA from the National Autism Association, updated with the latest prevalence numbers. Autism now affects 1 in 88 children in the US.